Rylie’s Torticollis and Plagiocephaly Diagnosis 

Torticollis and Plagiocephaly, two very big words for a tight neck and a flat spot on the back of your head. At 2 months old I started to see a flat spot on the back of Rylie’s head. When we brought it up to her GP he told us she had torticollis. The neck muscles on her right side are very tight. This was most likely caused from her being a bigger baby when she was born(8lbs 14oz). In February we took her to see a specialist at Kennedy Krieger in Baltimore. After the examination the doctor suggested physical therapy.

Rylie has been going to physical therapy once a week since then. I absolutely love her physical therapist. She is a sweet lady, really great with Rylie and very knowledgeable. Rylie has improved so much since starting PT. I’m very happy with the progress that she’s making.

To ensure that she gets the best result possible we have decided to get her a head shaping helmet. The doctors left it up to us and I thought it would be best to get the helmet so that I know I tried everything possible to give her the best head shape possible (hopefully she’ll appreciate it when she gets older). The helmet will be on for 3 to 4 months but it could be longer because her torticollis needs to be 100% corrected before they take the helmet off. Rylie will have to wear the helmet 23 hours a day.

On Friday she gets her helmet and I’m a little nervous how she will take it because she typically doesn’t like things on her head. I’ll keep you guys posted on how it all goes!

Rylie’s head scan from the other day.

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